V. David, C. Berville, J. Iguenane, and S. Ravilly, Éducation thérapeutique et mucoviscidose, Éducation du Patient et Enjeux de Santé, vol.25, issue.1, pp.7-12, 2007.

V. David, J. Iguenane, and S. Ravilly, L?????ducation th??rapeutique dans la mucoviscidose : quelles comp??tences pour le patient ?, Revue des Maladies Respiratoires, vol.24, issue.1, pp.57-62, 2007.
DOI : 10.1016/S0761-8425(07)91012-8

D. Lanuza, C. Lefaiver, R. Brown, R. Muehrer, M. Murray et al., A longitudinal study of patients' symptoms before and during the first year after lung transplantation, Clinical Transplantation, vol.7, issue.6, pp.576-589, 2012.
DOI : 10.1111/j.1600-6143.2006.01681.x

G. Ullrich, lung transplants through the patient's eyes: results of interviews with young adults, 2008.

S. Moloney, L. Cicutto, M. Hutcheon, and L. Singer, Deciding about Lung Transplantation: Informational Needs of Patients and Support Persons, Progress in Transplantation, vol.3, issue.12, pp.183-192, 2007.
DOI : 10.7326/0003-4819-138-5-200303040-00028

K. Vandemheen, S. Aaron, C. Poirier, E. Tullis, O. Connor et al., Development of a Decision Aid for Adult Cystic Fibrosis Patients considering Referral for Lung Transplantation, Progress in Transplantation, vol.20, issue.1, pp.81-87, 2010.
DOI : 10.1016/j.jtcvs.2003.11.047

C. Marchand, L. Sahli, L. Rhun, A. Ravilly, S. Danner-boucher et al., Motivations et freins ?? la greffe chez patients, aidants et m??decins dans la mucoviscidose, Revue des Maladies Respiratoires, vol.31, issue.3, pp.237-247, 2014.
DOI : 10.1016/j.rmr.2013.06.004

F. Raynal and A. Rieunier, Pédagogie: dictionnaire des concepts clés. Apprentissages, formation et psychologie cognitive, Paris : ESF éditeur, 1997.

C. Marchand, D. Ivernois, J. Assal, J. Slama, G. Hivon et al., An analysis, using concept mapping, of diabetic patients' knowledge, before and after patient education, Medical Teacher, vol.24, issue.1, pp.90-99, 2002.
DOI : 10.1080/01421590120091087

C. Marchand, C. Poitou, C. Pinosa, B. Dehaye, A. Basdevant et al., Cognitive Structures of Obese Patients undergoing Bariatric Surgery: a Concept Mapping Analysis, Obesity Surgery, vol.15, issue.10, pp.1350-1356, 2007.
DOI : 10.1080/001318800363908

C. Marchand, C. Crozet, D. Martin, J. Robert, J. Ivernois et al., Etude par cartes conceptuelles des connaissances sur l'alimentation des enfants diabétiques et de leurs parents, Rev Med Suisse, vol.3, pp.868-872, 2007.

C. Marchand, C. Poitou, C. Pinosa, . Harry, and A. Basdevant, Using concept maps to describe the evolution in obese patients' knowledge and expectations following bariatric surgery, Education th??rapeutique du patient - Therapeutic patient education, vol.58, issue.1, pp.49-55, 2009.
DOI : 10.1007/s11695-007-9009-2

C. Marchand, B. Amory-rébérot, M. Etévé, S. Proust, N. Ruelle et al., Utilit?? de la carte conceptuelle dans le suivi ??ducatif de patients au sein d???un p??le de pr??vention et d?????ducation du patient, Education Th??rapeutique du Patient - Therapeutic Patient Education, vol.3, issue.1, pp.31-40, 2012.
DOI : 10.1051/tpe/2011105

K. Lowton, ???Double or quits???: perceptions and management of organ transplantation by adults with cystic fibrosis, Social Science & Medicine, vol.56, issue.6, pp.1355-1367, 2003.
DOI : 10.1016/S0277-9536(02)00134-X

R. Quivy and L. Van-canpenhoudt, Manuel de recherche en sciences sociales. Paris : Dunod, 2011.

D. Ivernois, J. Gagnayre, R. Membre, and I. , Comp??tences d???adaptation ?? la maladie du patient : une proposition, Education Th??rapeutique du Patient - Therapeutic Patient Education, vol.114, issue.1, pp.201-205, 2011.
DOI : 10.1051/tpe/2011103

G. Ullrich, H. Jänsch, S. Schmidt, M. Strüber, and J. Niedermeyer, Consulting the " experts " : a pilot study on perceptions of professional support among lung transplant recipients and accompanying relatives, Prog Transplant, vol.15, pp.115-122, 2005.

J. Tardif, Pour un enseignement stratégique: l'apport de la psychologie cognitive. Montréal : Logiques, p.474, 1992.

D. Ivernois, J. Gagnayre, and R. , Apprendre à éduquer le patient: approche pédagogique 4 e éd, Paris : Maloine, vol.150, 2011.

R. Wilson, D. Brown, M. Boothe, and F. Weng, Improving the Delivery of Patient Education about Kidney Transplant in a Transplant Center, Progress in Transplantation, vol.21, issue.5, pp.403-412, 2012.
DOI : 10.1016/S0738-3991(02)00239-2

M. Fortin, Fondements et étapes du processus de recherche. Méthodes quantitatives et qualitatives. 2 e éd, pp.632-10104